Monday, 20 October 2025

trying - again....

here i am - just me + Lily;
my beautiful Bear has left the building...so at this point, my days are filled with tears

unusual for me - but so much has changed now

just looking back over the last few years on this blog
it is hard - just to try to read lines without even stopping for a moment - i cannot read like you are doing - at speed - recalling every word even if you read 40 pages - you will still want to Get To The End...
if i read 3 lines i have to stop - sit back - look away...then carry on if i have to mindset of the day - some days?
better to be outside in the the cold, trying not to think...

- some of this [below] is quite confusing [even to me....]
plus, i  created another separate blog when i thought i would be All OK - but that isn't very useful, as my reading / writing + comprehension are all something that make it hard for me to get the correct words / the way of explaining things etc
i really thought - for so long - i would be back to Me....

unfortunately i have started to understand [properly] what really happened to me.

for many, they look down + see nothing other that what it looks like...not the reality of what it really is

see below - 5 years back [after Lily's little face] 
ALMOST published on 05/11/2020 - handily, i couldn't work out how to publish it...

i may just begin to use this one again, as it doesn't need changing at all, whereas the second blog gives different fonts / pages etc etc - too much chaos...i become very frustrated

so - we'll see. it is not like i have anyone to chat to, so putting totally tedious waffle on here?
why not why not why not...


lily














"11/2020

Do your post heere ... then preview , change accordingly and then publish :)


:(

ok

goog;e have f**ked the other thing by the look of it .. google do that. 


I know

twits

ok. disc space fixed. cant fix blog soz!

ok! Thanks very much Pete  :))no w"



Sunday, 18 March 2018

I have aphasia

I have just put in all the things I put onto JustGiving for the last week. Obviously I am asking for a bit of ‘charrity’  heh heh

Two many things all at once, so hopefully you can see what I am on about! Tell people what actually happened to me … almost...

I have aphasia. Interesting. A few shrieks after having ovarian cancer - but amazingly that was easier to deal with. This has taken me nearly 4 years just to deal with the fact that I can’t read, can’t remember things - sometimes I can’t focus at all…but I can’t read YET [if I poke my eyes almost into a book it helps a bit] etc.

So it has taken a long time to get here – but I AM here. And I now want something please - I want to raise some funds for all the people from all walks of life who have developed aphasia. I am amazed about how many people there are that have aphasia. About 367,000 people in the UK. A LOT!

Aphasia is a communication 'disability' caused by damage to the language centres of the brain. It can affect understanding of language, speech, reading and writing. I had experienced a massive ‘subarachnoid brain haemorrhage’. Then a stroke 4 days later. That’s where I said ‘interesting’.

To be fair, it isn’t very interesting – but it stops me having a ‘normal’ conversation, sometimes a lot, sometimes a little. Some days I can’t read at all – other days I read a few pages. Yelling with delight! Some people have a harder time than I do – and we REALLY want to help one another. Mainly to have a bit of a chuckle!

Aphasia does not affect one's intelligence – it just stops you from communicating ‘normally’.

To me, this little challenge [my first one - so far!] is raising funds to help in the fight against not being able to speak - or have someone to sit near you just to make you feel better. This challenge is an opportunity for me to raise awareness and significant funds to help the fight against being alone or being afraid.

Aphasia can affect anyone at all ... so your money will be well spent.

Thanks for taking the time to visit my JustGiving page and to read all this.
Onward and upward!

News!

Bit of news. Feb 14th [Valentine’s day] I had an MRA – I got the results! The jolly old aneurysm that nearly killed me [it was clipped 8 hours after FH found me] and also the other ‘incidental’ [eh?] aneurysms – well, the letter says ‘have excellent appearances of your previous treatment’. Rah.

Arranged for next year’s scan and that is that. Great!

I was rather stressed. Not a lot of 'proper' speaking. Now I want a tattoo like Angelina.

BUT I feel much better! And I would love to get a bit more pennies here

Thanks!

#sandhy-robinson-jones JustGiving

04

Busy busy…

Off to the breast check this morning - and that is something I ALWAYS know I'm going. Very difficult to park - much better in the summer.

Today it's freezing. But a good thing to do once a year, that says: 'great, everything is fine'.

Plus I am dropping off my beautiful wigs down to Force.

Plus it’s International Women's Day! Bwaa! Let’s shout a bit here girls!

As usual [I know - I'm a nagger], I would be chuffed if you donated a little money (or a LOT) – a lot of women AND men have aphasia – thanks for helping me!
x

Here is my #sandhy-robinson-jones JustGiving


02

Interesting – as usual

Today was VERY interesting; I have started remembering things.

Places I've been to - I remember what we did there; going in the antique shops, having coffee and this time I am so much calmer [that’ll be the old brain].

We had very English coffee with HUGE sandwiches in Ashburton.

It is becoming more ‘real’, even when I can’t speak entire sentences, I can give it a good old go. After 4 years I am getting more tolerant. I’ve stopped feeling like screaming.

Life, as I know very well, goes on. And my brain MUST be getting better? I hope so.

IMG_2749

The 5th day…

The 5th day started brilliantly! Did a design thing! Had help from Mike with the ‘Big Lottery Fund’ stuff – new .esp had to be changed back into an old version. Thanks for that dude!

Smile

And some painting in the shed on our new chairs. Good things. Except Bear ran across the entire lot. Hmm

And I have had lots of people sending donations since last night. I am so CHUFFED!

Also, people are taking the Living with Aphasia info and passing it around. Just as good as money sometimes

Good day ❤️

P.S.: The Quay? Mostly raining…

03

4th day peeps!

I am having one of those days I’m afraid - swearing in my head, as everything is going wrong. So this is very quick.

Remember, the 1st of May is our FIRST anniversary! A rather fun walk for everyone to go on and bringing friends for a party type of thing afterward.

We are having Sing Aphasia [that’s us, singing!], Exeter Foundation visiting with a big cheque, lots of super cake & pasties! Yum.

In the meantime, I am asking for donations all the way round the Quay!

And today, here on my jolly JustGiving page  :)

https://www.justgiving.com/fundraising/sandhy-robinson-jones

IMG_2610-01

Sunday!

The snow is disappearing. We are off into the countryside. It's perfect, as one doesn't need to talk much.

The best is that I can now ask & everyone knows exactly what I'm on about. 4 years seems quick - but it's not.

Look up 'subarachnoid haemorrhage' today. Scary. VERY scary…

S-01

Rainy!

3rd day - aphasia is waiting to be conquered!

Todays 'speaking' bit; can you imagine every day NOT talking properly? Not explaining things? Or speaking but no one ‘gets’ it?

They sort of change your mind for you as they don’t understand, so they make a plan. It is so kind – sometimes. Today I discovered that the bedroom window is cracked – I couldn’t explain it properly [note: I get cross], so the FH had to come upstairs & look at it. So a small thing becomes a BIG thing. Grr.

If you can, a couple of pennies would help!

Ta!

one

Morning peeps!

The snow is still here - freezing! So we're all at home right? Nice!

If you have time, have a look at my story. If you can, please help me to raise my aphasia page? It's making me so excited to actually even do this update - yay! Let's see how it goes today!

xx

https://www.justgiving.com/fundraising/sandhy-robinson-jones

Friday, 9 February 2018

Friday – hmm

I was listening to an interesting conversation today. It was about having irritating people not noticing what the people around them are struggling with. And they aren’t ‘helping’. You know – like people with cancer, or brain subarachnoid haemorrhage … you know – these sort of frightful afternoon drama attacks. Imagine.

And by the way – apparently [according to our random internet types] one-third of patients with brain subarachnoid haemorrhage will survive with good recovery; one-third will survive with a disability; and one-third will die. Bugger – must be a nightmare when you’re trundling along and you suddenly die of ‘the one-third’.

Anyway – where was I? Oh yes - I used lots of people with all that kind of stuff and had no problem at all with having the cancer part. Although I didn’t have a tattoo [might go and have that now!] – if I wanted a masseuse I’d get my friend Julie to do it! Or Force.

I have many more problems now, as people don't get the fact that my 'problem' - i.e.: I can sometime speak, and sometimes I can’t explain – and all the problems that I have cannot be explained in a chat. Try that at the doctor…

And these people will simply ‘fill in’ for us. No one ever tried to remove my cancer and sort THAT out for me. But they can say what I am trying to say as I am an aphasia. Tut tut! Not a very good idea. Usually it’s a totally disaster, as I will be trying to find a different work / thing / plot etc. And usually I was getting very angry – now I can get my head round it. Which means I wont have a heart attach. Yay.

Having had cancer and now I have the brain haemorrhage and the stroke, the people I have struggled with have been the doctors amazingly enough. It’s almost ‘off you go – you’ll be fine’. Well, I wasn’t fine at all. But eventually I trundled off to the hospital and spoke to my cancer peeps. They helped me get it straight with my daktari. Very good plan.

It is worse when you are a brain haemorrhage / aphasia / was a cancer type person - life is so full of people who can't 'cope' with dealing with that.

Personally I wouldn't discrimination with people who can't help others – I’d simply walk away.

not-forgive

Thursday, 8 February 2018

It was a speedy Wednesday [not!]

Well, it’s actually Thursday. How is it that everything has to be done at a fast, rushing rate? I never seem to get a ‘chilled out brain’. Ever. Nope. And I think I had the same thing before my brain got rather slow with the old brain haemorrhage! People on the earth need to slow down … but we can’t can we?

On Wednesday I was doing things for the Living with Aphasia with Barbara. She organises what we should do, then we just go off and do whatever random stuff that needs doing.

We now have a Living with Aphasia sponsorship afternoon thing come up. We will be trundling round the Quay and then we will be celebrating our One Year Anniversary of our charity. Cool! A few scrummy rugby chaps to help us open the day. All on the 1st of May.

In the meantime I need a new JustGiving so I can actually get a bit of fundraising without having a nervous breakdown…it’s coming, but it’s taking a wee while.

In the meantime I need to get lots of house stuff into the attics. We have some chaps who are coming to paint all the upstairs rooms – the ceiling, the walls, the wood work … aargh!

Stress…check out the wall paint. Lovely and blue! It should look great. Fingers crossed! At the moment it’s all stripped and seriously looks horrid.

calam

Off to add a few more bits into the attic now! But, that's the third day that I’ve been writing. Amazing …

Tuesday, 6 February 2018

Already on the second page!

A second page in two days? A miracle. Really! To actually put anything sensible on paper [or stuff that looks like paper] is quite hard when you have a few interesting things going on in your ‘head’.

I am going to try to create a sort of ‘this is what happened’. That is going to be for me mostly – you can read along if you want. Hopefully my head will feel SO much better after I try to understand everything. One of the things is the Facebook pages – so many remarks spoken by the people who I knew whilst I was in hospital [or madly trying to escape…] and the FH told everyone what was going on then. He is so supportive of me. I am still not quite ME. But I will get there. The FH has an interesting life with a nutty wife! :)

Half the time I can’t work out what happened [I’ve been told MANY times] – that whole thing about ‘you were in a coma’ – shriek! What ever was I thinking of that day?  I had my Women V Cancer – Ride the Night thing coming up … it was our first one. I sort of missed it! Bugger.

And this year I should really try to do the London to Paris women v cancer – I got my £3,394.79 money sorted out to go to Vietnam but unfortunately I could not do it. But I could do it this year? Hmm. Maybe. Lot of pain jibber around at the moment. Onward and upward as usual.

Maybe as my brain trundles along, things will carry on getting better … in the meantime, I have a MRI scan next week. Such fun! They check that my head is ok. Good show! And today I am off to the Living with Aphasia this afternoon. Nice and chilled and the cake will be scrummy!

Brandon-Kidwell-2Brandon Kidwell

Monday, 5 February 2018

Getting to the end of 4 years…

This is a sort of new blog – now I can write a lot more, and I actually read more too. Amazing. But it can be very irritating as some of my spelling and words get rather confusing. But hey – you don’t have to read this you know …

Incredible to think that the brain aneurysm and stroke [grr] happened almost 4 years ago. Bah. But to be fair, I am starting to feel a bit less stressed and more ‘human’. Fingers crossed.

I shall be having a teeny party in May this year…19th of May in 2014 was when I ‘fell over and didn’t get up for a few days’ heh heh

What I am going to do is do this – maybe a daily blog? I need to try to remember things. Hard!

So – we’ll see! Hope you don't die of boredom!  Winking smile

In the meantime I am doing a lot of stuff in the house!
IMG_2392

Tuesday, 23 June 2015

Well – a blog post!

Lady Gaga

I have not done this for over a year – my writings is dreadful, my speech is also rubbish. BUT both are better than they were.

Even my hair is getting longer. So, this is a start – onward and upwards! What this space…

Wednesday, 1 October 2014

tickled pink!

Below the picture is a guest post by Joanne [pictured below], a breast cancer survivor who has something she'd like you to understand.
…just so you know…no-one is particularly 'tickled pink' if they've actually had breast cancer. I don't think I'd be very impressed with a 'Tickled Teal' campaign for ovarian cancer awareness either! Good grief - so, read on!

imageOctober, traditionally known for Halloween, Autumn and harvest festivals, is now known as Breast Cancer Awareness month or'Tickled Pink'.

I have no idea who came up with Tickled Pink but I seriously would like to bash their faces in. It's quite obvious, as with most things to raise awareness of breast cancer, e.g.: Facebook status to do with bra colour, handbags, gestation periods - that these people have never had to go through breast or any other cancers.

I don't get offended by many things but this offends me.

The strange thing is, because you have gone through it, your friends think you will automatically sign up to this shit and then they get all defensive when you set the record straight.

tickled_pink_NO

There was a time when I would go around buying Tickled Pink stuff thinking I was doing my bit for breast cancer awareness (and let's be honest it's everywhere in Asda throughout October) and not really give it much thought. Then BANG! 2 years ago I heard the words "it's breast cancer" well feck me, doesn't your perspective change then.

One mastectomy later, a 6 inch scar where there used to be a breast, surgeries, more scars and I can tell you it certainly isn't pink, it isn't fluffy and it damn well isn't funny.

Then I got to thinking about Tickled Pink, just how much of the profit of all the products sold actually goes to breast cancer awareness or cancer research? Not the whole lot I would hazard a guess, the supermarket will take a cut, will it be gift aided? Now the sheer volume of products sold means the donation will look huge, but not as huge as if everyone donated what they would pay for these products directly to BCC or cancer research - the amount would be phenomenal.

Please don't buy into the crap, it's a supermarkets way of getting you to buy products you normally wouldn't so they make more money out of the misery that breast cancer causes and all they do is wrap it up with a pink and fluffy name.

I'm a survivor. Don't turn October pink in my name, donate straight to breast cancer care or cancer research or sponsor an event. That's how to make the biggest difference. There are plenty cancer charities out there. Put your money where it will be most effective, and instead of changing your Facebook status to a bra colour (really offensive if someone has no breasts), change it to one that says "For breast cancer awareness month I have donated £XXX to BCC or cancer research".

Thank you,
~ Joanne

image 2

LABELS: ADVOCATING OUR OWN HEALTH, BITCHING ABOUT CANCER,CANCER, CANCER AWARENESS, CHARITY FOR RESEARCH, DONATING FOR RESEARCH, WOMEN V CANCER

Friday, 2 May 2014

check up or death sentence

keep-calm-and-fingers-crossed-11 Astoundingly, my last blog post was over 4 months ago - slack! How time flies when you're self employed.

In February 2008, I was diagnosed with ovarian cancer. SIX years  and three months ago. Then, I thought that I had 0 to 5 years to live at the outside. But here I am - over SIX years out of dx…and really starting to believe it. 'It' being - I 'might' survive. Tentatively.

I have been in stasis; 'suspension of the passage of time'…and it's odd. It's almost as if everything floats away - the only thing one can think of is one's Death Sentence and getting though the day…why bother to do any of those long term things? The little rat in the brain tells one 'ah you'll just die anyway, so why bother?' So you don't.

Well, the result is that now, due to my five years of inertia, we have a LOT of stuff to do - paint the house, inside and out; redo my office, as the cats have destroyed everything in there [little beasts]; we've recently dug up the entire garden and replanted totally everything. And so on. Lots of 'normal' things…the things that everyone complains about - but that [suddenly] I can't wait to get to grips with!

Sadly, I lost a lot of friends while I was wallowing in my own 'I'm going to die' sitcom. And each one of them, whilst being heart breaking, was also terrifying … me, but not me. Each time. I loved those gutsy girls so much, and now they're gone. But each of them lives on in my heart driving me to continuously raise funds, raise awareness - just the very little I can do to try to assuage my Survivors Guilt, and to hopefully save just one woman's life by getting the symptoms out there.

This week has been a tad fraught - the FH suddenly had a brainwave that SURELY it was time for my check-up? Hmm - I'd shelved it and was a bit startled to note that it was due in June. With the new appointment system at the RD&E, you no longer get your appointment as you leave your check-up - you wait for it to arrive in the post. Which means you could get notice 2 days in advance - which means you wouldn't have time to get bloods drawn etc. Which is STRESSFUL!

Recently, I have been having 'symptoms' [read: 'hysteria']. When I was diagnosed, one of the most extreme symptoms I had was exhaustion. Not tiredness; exhaustion. I'd be working, and suddenly HAVE to put my head on the desk, as I simply couldn't hold it up any more. And I have this now. And for the last two weeks.

Renninson [my surgeon and life saver] told me that IF I were to have a recurrence, the symptoms would be the same as they were initially. [couldn't work that one out at all - how is that possible, with no ovaries?]. And the last few weeks this remark has been bouncing around my skull like a death knell. In addition, I have had shocking pain in my gut - enough to double me over and stop me in my tracks. Always in the place where I had the laparoscopy, or where the initial tumour was. So more than likely adhesions right? And pain in my bones - my back, my wrists, my knees [they make a very alarming crunching sound on the way downstairs] - even my feet.

So I called my cancer nurse, the lovely Gail, and asked about my next appointment. We had a chat about what I've just mentioned and she said she'd try to find out when my appointment was. Viola! She rang back and said I could go THIS Friday! Shriek! Panic stations regarding the bloods and no time. But, all sorted by Gail - I was booked into the phlebotomists at the RD&E, and just had to turn up for the Vampire Attack. Which I did yesterday.

So tomorrow, I have The Check Up. I truly believe that only people who have had cancer or some other hideous disease that can recur can understand how scary this is. It's insane, as nothing has changed since I didn't know I had a check up, but actually everything has now that I DO know I have one! Handily, I only have tonight to be petrified! I suppose it's down to the fact that there is a 50/50 chance of a recurrence. Not bad odds, but I'd prefer better. One amazing thing is that Gail the Wonder Nurse called me today to say my CA 125 is still at 7!! That is fantastic. Really. It was 1149 when I was dx. So I do feel more confident now - but it's the symptoms that the surgeons read, not the CA 125 results.

Fingers crossed for tomorrow please! And DO know the symptoms …

Friday, 20 December 2013

Happy Christmas? Oh yes…

christmas-menu I really don't like Christmas. It sort of sucks. Everyone being all 'happy' for no good reason. I lost both my lovely Dad and my sweet father-in-law round Christmas. I was diagnosed with cancer just after Christmas. I had a massive scan-scare last Christmas. So - actually Christmas for me? It's crap. I get sideswiped by sadness.

I will be sitting around doing something, then BOOM I am almost in tears. Or totally in tears. Just memories; thoughts of things shared in the past…just missing people. Missing the missing people.

Mostly my Dad - he liked a Real Ale at Christmas. He liked Stilton like I do, and the dark meat on the turkey like I do - and dark rum & raisin chocolate. And so on…tut, I am so like my father, so I am constantly reminded of him. Which is mostly a happy thing, but some days - a very sad thing.

dad

But this year has been interesting and amazing. I did the 400km cycle across Cuba [brilliant - but torturous!] - I have now raised over K12.5 for research - I am very proud of this! Plus I have a cupboard full of cycle medals - of which I am also proud.  I never EVER thought I would get a medal for anything!

And - we have a new little grand son…I honestly didn't think I'd live to see this Christmas. To actually be here to meet Joseph? It's incredible. Here he is with the very first Christmas gift of his life…and it made me cry to actually buy it - because I was so happy to still be here to do this.

DSC_0031

This year has been a catharsis for me. And this post is to say thank you. Thank you to everyone who has helped me get to this point. A point where I can actually now start to plan for the future [fingers crossed]. I know - it sounds insane. But until now I have been thinking 'wtf - I'll probably die before I finish [insert anything here]' - but it seems my mind has caught up with my healing body. Now I have plans!!

The garden needs an overhaul. The house does too - everything became frozen in time when I was diagnosed with cancer. Not so any more. It has taken over 5 years, but I am finally getting with the program. But even so, I still touch wood for every little thing. Expecting something to go wrong.

CUBA-GROUP-1-END-(Large)

So ~ thank you to everyone who has helped me. Thank you for the little things; my Mum donating to Kate instead of me, when we didn't think Kate would make the minimum amount for Cuba. Medhat, for donating his restaurant for an event that raised over £1000 even though it was FREEZING cold. Peachy Farmer for playing at that same event - they were absolutely amazing! Claremont Marquees for giving me a marquee…Liz for hosting a brunch that raised a fortune; Lindsey for raffling one of her paintings...on and on...I could fill the entire internet with a list of people who have been so kind. But I won't. You all know who you are. And you all know how grateful I am. And you all know you have my heart in your hands.

KBO then. As they say! Until the Ride the Night eh? ;)


Anns Armyt RTN 2014

Thursday, 19 December 2013

Cuba. And things

DSC_0155 This is a long overdue post! The Cuba cycle was amazing - hard, but still, it should be hard. People sponsor us in the expectation that we will do something in return. That is what we promise. To cycle 400km in a foreign country so that they will sponsor us. And really - we did! We cycled each day in 40 degree heat and 90% humidity. Everyone was completely out of their comfort zone. You could NOT train for this in the UK.

But I am proud to say that I cycled every single sweaty kilometre! Much to my amazement. I really didn't think I'd trained enough. But patently I had, as I didn't end up in the bus, apart from at the stops, where I was leaping in with gay abandon to get my hot and sweaty self under the air conditioning vent!

We had to drink non stop and we had our heads soaked every afternoon to counteract the effect of the terribly draining humidity. For some reason I was lucky and it didn't affect me all that much - and I had crisps! SALT!! Very important. They do not have crisps in Cuba for some reason.

Cuba itself is stunning. Greener than the UK, and the people much more friendly.  The landscape is beautiful - Cuba is the island of landscapes; rolling hills, mountains, valleys and beautiful bays. And we cycled through them. Cursing the flats, not the hills. We were so glad of hills, as they gave us down hills - and a bit of a breeze.

The same day that I finished the cycle, I called the FH. He was so pleased for me - but at the same time he had to tell me that he was flying home from Grenada, where he was supposed to be having a relaxing break, to be with his father. Harold was in hospital and very, very ill. That day, I was out in a purple car with Helen. And I was so grateful that I was with her. We simply carried on. Helen understands loss. Even then, I knew we would lose him. It was heartbreaking.

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Monday, 11 November 2013

Jeremy 'H'unt

einstein So. I am never up to date with the news, as I never watch TV. I hate TV. Every time I DO watch it's either something that makes me feel like slightly killing myself or killing at least 12 other people. So I don't watch it. And the radio is just as bad - so my 'News' is garnered either by posts on Facebook or [if I feel really interested] by a Google search [of posts on Facebook] of what's happening today.

Subsequently, I was not 100% aware of the Saatchi Bill Fiasco. Until I had an email from Ovarian Cancer Action. I am one of their Voices, so possibly I SHOULD  be aware of this kind of thing. Well. I am now! And now I am Fuming!!

Why? Because some foolish man - Jeremy Hunt to be precise [Hunt?? Really? ok…], has stated that 'cancer already has a cure'. So we don't need the Saatchi Bill. Well, well! I totally missed the news headlines about that little miracle! Stupid man!! IF cancer has been cured, then how is it that there are still so many of my friends that are dying?? DO let me know Jeremy won't you?

It's astounding that a modern man can be so completely and  moronically out of touch. The treatment for ovarian cancer has not changed in the last 45 years. Oh, and DO correct me if I'm wrong! Thank God that we didn't have a 'Hunt' when Faber was trying to create a cure for cancer - imagine that! Hunt would have crushed chemotherapy and - oh joy! I and thousands of other cancer patients would now be dead thanks to his lack of foresight. Innovation is the only way forward you foolish man.

Do you think, Jeremy, that the women that Farber tested chemotherapy on in the 40's were like you? No. Of course they weren't. They were women who knew that if they didn't try something new - they would simply die. And dying is not an option for cancer patients - in OUR minds, survival is the only option. You make us sick [well - sicker]. And patently, you wish to REALLY make us sick, as in making us die - due to lack of CHOICE. We have to have a choice here - the facts being that IF there is a doctor who has a reasonable treatment, tested and tried in the lab - it should be OUR choice, as cancer patients, to allow that doctor to test his new and innovative treatment on us. NOT YOURS. IF we are at a point in our treatment that none of the traditional [as in chemo] tried and tested treatments will help, WHY is it that we should not be allowed to give permission to a doctor to trial his innovative treatment on us? WHY is it it YOUR decision?

Who do you think you ARE to decide for women whether or not we can live? Who do you think you are to decide that someone who has studied our disease should not be allowed to try to help us?

Why is it that you think you know what is best for women with Ovarian cancer? You have never had it. And never will. Do you think that if perhaps your wife or daughter had ovarian cancer [God forbid such a thing], and were at their very last choice, that you would not wish to have the help of an INNOVATIVE doctor - whom could perhaps save her life?

I truly believe that in that situation, you would definitely change your [at the moment] ridiculous and thoughtless point of view. IF there is already a 'cure for cancer' then DO share. I would love to tell the friends I have that are fighting this disease. I am sure it would make their bloody day to know.

"It has been reported that Jeremy Hunt at the Department of Health announced last week that it would object to the bill as there was "already a cure for cancer".

Lord Saatchi’s Medical Innovation Bill is simply helping doctors innovate new treatments and cures for cancer and other diseases. Why has it been refused? HOW can you object? How could anyone object?

Please. Share this information. Get people to see this. We deserve better than Hunt and his inane refusal. IF I were to have a recurrence, I would desperately want the choice of innovative treatment - the existing treatments we have are limited, and one's body can become immune to them. And the cancer cells can too.

Do NOT let Jeremy Hunt limit your choices. And by doing so, limit your life. Share.