I have aphasia

I have just put in all the things I put onto JustGiving for the last week. Obviously I am asking for a bit of ‘charrity’  heh heh

Two many things all at once, so hopefully you can see what I am on about! Tell people what actually happened to me … almost...

I have aphasia. Interesting. A few shrieks after having ovarian cancer - but amazingly that was easier to deal with. This has taken me nearly 4 years just to deal with the fact that I can’t read, can’t remember things - sometimes I can’t focus at all…but I can’t read YET [if I poke my eyes almost into a book it helps a bit] etc.

So it has taken a long time to get here – but I AM here. And I now want something please - I want to raise some funds for all the people from all walks of life who have developed aphasia. I am amazed about how many people there are that have aphasia. About 367,000 people in the UK. A LOT!

Aphasia is a communication 'disability' caused by damage to the language centres of the brain. It can affect understanding of language, speech, reading and writing. I had experienced a massive ‘subarachnoid brain haemorrhage’. Then a stroke 4 days later. That’s where I said ‘interesting’.

To be fair, it isn’t very interesting – but it stops me having a ‘normal’ conversation, sometimes a lot, sometimes a little. Some days I can’t read at all – other days I read a few pages. Yelling with delight! Some people have a harder time than I do – and we REALLY want to help one another. Mainly to have a bit of a chuckle!

Aphasia does not affect one's intelligence – it just stops you from communicating ‘normally’.

To me, this little challenge [my first one - so far!] is raising funds to help in the fight against not being able to speak - or have someone to sit near you just to make you feel better. This challenge is an opportunity for me to raise awareness and significant funds to help the fight against being alone or being afraid.

Aphasia can affect anyone at all ... so your money will be well spent.

Thanks for taking the time to visit my JustGiving page and to read all this.
Onward and upward!

News!

Bit of news. Feb 14th [Valentine’s day] I had an MRA – I got the results! The jolly old aneurysm that nearly killed me [it was clipped 8 hours after FH found me] and also the other ‘incidental’ [eh?] aneurysms – well, the letter says ‘have excellent appearances of your previous treatment’. Rah.

Arranged for next year’s scan and that is that. Great!

I was rather stressed. Not a lot of 'proper' speaking. Now I want a tattoo like Angelina.

BUT I feel much better! And I would love to get a bit more pennies here

Thanks!

#sandhy-robinson-jones JustGiving

Busy busy…

Off to the breast check this morning - and that is something I ALWAYS know I'm going. Very difficult to park - much better in the summer.

Today it's freezing. But a good thing to do once a year, that says: 'great, everything is fine'.

Plus I am dropping off my beautiful wigs down to Force.

Plus it’s International Women's Day! Bwaa! Let’s shout a bit here girls!

As usual [I know - I'm a nagger], I would be chuffed if you donated a little money (or a LOT) – a lot of women AND men have aphasia – thanks for helping me!
x

Here is my #sandhy-robinson-jones JustGiving

Interesting – as usual

Today was VERY interesting; I have started remembering things.

Places I've been to - I remember what we did there; going in the antique shops, having coffee and this time I am so much calmer [that’ll be the old brain].

We had very English coffee with HUGE sandwiches in Ashburton.

It is becoming more ‘real’, even when I can’t speak entire sentences, I can give it a good old go. After 4 years I am getting more tolerant. I’ve stopped feeling like screaming.

Life, as I know very well, goes on. And my brain MUST be getting better? I hope so.

The 5th day…

The 5th day started brilliantly! Did a design thing! Had help from Mike with the ‘Big Lottery Fund’ stuff – new .esp had to be changed back into an old version. Thanks for that dude!

And some painting in the shed on our new chairs. Good things. Except Bear ran across the entire lot. Hmm

And I have had lots of people sending donations since last night. I am so CHUFFED!

Also, people are taking the Living with Aphasia info and passing it around. Just as good as money sometimes

Good day ❤️

P.S.: The Quay? Mostly raining…

Sunday!

The snow is disappearing. We are off into the countryside. It's perfect, as one doesn't need to talk much.

The best is that I can now ask & everyone knows exactly what I'm on about. 4 years seems quick - but it's not.

Look up 'subarachnoid haemorrhage' today. Scary. VERY scary…

Rainy!

3rd day - aphasia is waiting to be conquered!

Todays 'speaking' bit; can you imagine every day NOT talking properly? Not explaining things? Or speaking but no one ‘gets’ it?

They sort of change your mind for you as they don’t understand, so they make a plan. It is so kind – sometimes. Today I discovered that the bedroom window is cracked – I couldn’t explain it properly [note: I get cross], so the FH had to come upstairs & look at it. So a small thing becomes a BIG thing. Grr.

If you can, a couple of pennies would help!

Ta!

Morning peeps!

The snow is still here - freezing! So we're all at home right? Nice!

If you have time, have a look at my story. If you can, please help me to raise my aphasia page? It's making me so excited to actually even do this update - yay! Let's see how it goes today!

xx

https://www.justgiving.com/fundraising/sandhy-robinson-jones

letters [in scary brown envelopes]

Go back! Listen to the music! Take the time – it isn't much time. Got my hair. For the moment. Got my life – I'm going to keep it. Today I got the letters from the RD&E. Red return address gives it away every time! One was written by Renninson on the 14th January. It is now the 22nd. What? It arrived today to tell me that there was no evidence of any other 'abnormality 'on the MRI scan.

Good thing I rang them a week ago and knew this already – although to be fair, I didn't realise I should be worried! Now I have a 'worry vacuum' – I should have worried, and I didn't!! Aghast! So funny – I was so startled when Gail said "I am SO pleased to tell you…" – I was gobsmacked for a moment. Speechless. Then I got with the program and I was pleased too. If they'd found any other 'abnormalities' I may have had a heart attack. Or died of a massive hot flash – who knows? Can that happen? Death By Hot Flash?

The other letter confirmed my surgery date. And told me not to drink, eat or do anything interesting on the day. Ok. I am getting used to that crap.

Anyway – I filed the date and details in Outlook. Synched the iPhone [this is a MUST for me or I actually forget who I am]. But it was a bit upsetting. Once I'd read the letters, it all became real again [I am good at filing things AWAY]. I was upset – I wanted to phone the FH and ask him to come home. Of course I didn't. But I was crying – still opening mail. Slash slash. I opened the last bit, and what? A little Origami style packet. Hmm. I opened the initial [hand made] envelope. There was a card and another painstakingly wrapped parcel. Addressed to 'Zandra'. Ha! I knew who this was from – but I thought it was a birthday thing. Seems it wasn't. Just a friend thing [just?? er – not].

I opened it and there was a sweet card and the most amazing thing – a CD of the Very Best of Nina Simone...you know how I LOVE her.  Aah - 'My Baby Just Cares For Me'…gotta listen with wine! Those were the instructions on the parcel - and who am I to argue? And it has that track - 'Feeling Good'! The anthem for the OC girls. The best best song ever.

Thank you Jacket. You know how 'I Feel'. It's a new dawn, it's a new day – it's a new life…for me. And I'm feelin' good!!

Afterward, I carried on with the Massive Office Clearance – it is now done – just to clean all the cupboard fronts and away we go! Well, I will anyway… yay, a clearer head.

This is for the FH!. watch it – it's so cute :o)…and so true. I have the very Best and Favourite Husband ever.

for my FH.

my baby just cares …for me.